Friday, 31 January 2014

6 days in Quarantine

One of the draw backs of being in hospital, is the amount of illness that is around.

Last Saturday Evan was sick a number of times and had a few very 'bad' nappies.

As a precaution and a matter of routine he was put into an isolation ward on Sunday, and tests have confirmed that he has contracted the noro virus, and the kind wee sole that he is he shared, first me then Jenny and then it also spread throughout our family.

Evan at this stage is in his sixth night in an isolation ward, and this is my sixth night on a camp bed bedside him, he's in good form in himself, and is now roughly back up to the same weight he was when he came in here two weeks ago.

Ironically he came in for an operation as he wasn't gaining weight and he has ended up losing more.

During his time here he's had a number of scans and test which we are still awaiting the results of.

Again while Jenny 'does' days and I 'do' nights the support from family and friends is amazing, and Freya is 'holidaying' with granny & granda again.

Friday, 17 January 2014

Central Line in place.

Evan has had his Central Line replaced successfully earlier today and the TPN is now up and running, and shortly the nurse is going to run a 4hr drip which should see his sodium levels returned to normal, which will and can be balanced through his TPN.

But all in all he's in great form, and the staff here have been excellent.

Wednesday, 15 January 2014

Back to Barbour Ward

We've had Evan home since the start of December, with a weekly visit to the RVH to check his weight.

His weight has been fluctuating up and down over the last few weeks, but it came as a real kick in the stomach on Friday when we were told, it was necessary to replace the "Central Line" and put him back on TPN.

We were told this Monday to be in the Royal for 8am on Tuesday, so an early start to get everything packed and sorted.

And around 11am on Tuesday we were told that there was no opening on the surgical list, and to come back again on Friday, and to add to it when he was weighed he had put on weight since Friday.

Having thought that Evan needing TPN was both behind us and well in front of us, it has been an emotional time, and with the thought of him being back in hospital for another month, will bring a whole raft of other challenges.